Monthly Archives: June 2012

Why You Might Need to Drink More Water

Drinking water is important for any person but if you are on medication you might need to drink a bit more water than a person not on any medication. There are certain types of medication that can absorb more water from your digestive tract in order to work effectively.

Unwanted Symptoms

You may find that you have a series of unwanted symptoms such as constipation, dry mouth, skin problems, changes in appetite and a whole host of others, however, these could all be rectified by drinking a little bit more water everyday. Of course you should check with your health care provider just incase you are having a reaction to the medication rather than dehydration, which in itself could become a problem over time.

Rectifying Dehydration

One way to test your hydration level is to check the color of your urine. If your urine is a dark yellow then you are dehydrated and need to drink more. Urine should be clear to pale yellow to be at an optimum hydration level so you can keep drinking the same amount that you are now.

Why Drinking Water is Important

In a previous article I wrote about how water effects the body. If you want to find out more you can read my article The Importance of Drinking Water. If you’re struggling to get all of your water in you can also check out these 10 Sneaky Ways to Add More Water to Your Lifestyle.

Drinking Humor

If you have a sense of humor you might like some of these:

Rehab Is For Quitters Tshirts
Rehab Is For Quitters Tshirts by raggedshirts
Browse zazzle for a different t-shirt.zazzle

Drinking Bottles

Getting a drinking bottle is a great way to get some more water into your daily routine. Amazon have a great selection depending on what your budget is. There are bottles from £4 up to £25, they are all of high quality but some are larger or have different grips or cooling options. Take a look to see what you prefer.

Rehydration Packs

Dehydration can kill so it is vital to replace fluids if you are poorly or have been sweating excessively. I have written an article on Dehydration and How to Avoid It but I’ll also give you a load of resources so that you can rehydrate.

Reducing Alcohol Intake

Drinking alcohol can make you very dehydrated especially if you drink a lot. If you are looking for some help in reducing you alcohol intake then I would suggest the following.

I hope you’ve found this article useful. If you have any feedback please let me know in the comments.

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Some great tips on beating the heat for running in the summer or a hot climate.

  First day of summer and the weather responded by climbing into the 90s replete with humidity. Lovely. I’m much better at running in cold weather than I am in heat. At least in cold my body gradually warms up to a point where I’m comfortable running. In the heat, however, it’s easy for your body to overheat and that can be dangerous if not fatal. Yikes!

Here are some tips I’ve gleaned over the years and try to implement throughout the dog days of summer:

1. Run early in the morning – This tends to be the coolest part of the day before the sun has baked the world all day.

2. Dress smart – Wearing light colors that will reflect the sun’s rays away and loose fitting clothing that breathes as you run. Also, fabrics other than cotton that will wick away sweat and keep you cool are…

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Exercising With a Disability

When I first came out of hospital at the start of April 2012 I was very weak. I could just about get myself out of bed to get to the sofa where I would stay all day – that got very frustrating after a couple of days. Sitting around on my ass is not something I was used to and I wanted to get back to work as soon as possible.

I ordered a copy of the 30 Day Shred as it was a 30 day program that didn’t need much equipment and it looked like I could easily adapt it to my needs. I had looked on YouTube for exercises that I could do sitting down if necessary and without weights if I was feeling too weak. Luckily 30 Day Shred met both those criteria and it was also a very good price (I picked it up of £5/$7).

The first few weeks I could only work out once a week as I needed the other days to recover from the exertion I was that tired and weak. Eventually I built up my strength and stamina and I was then able to workout 3 days a week and get through the program.

The results I got from the program were just what I wanted! I gained strength, flexibility and stamina to that I could return to work 6 weeks later. I also toned up and lost 10lbs of fat and gained 4lbs of muscle but the best thing was that my swelling on my leg reduced and my limp got a bit better too.

Here’s a link to my review of the 30 Day Shred and I’ll also provide a link straight to the DVD on Amazon.

http://rcm-uk.amazon.co.uk/e/cm?t=itsnevlupyout-21&o=2&p=8&l=as1&asins=B002RNOS2Y&ref=tf_til&fc1=000000&IS2=1&lt1=_blank&m=amazon&lc1=0000FF&bc1=FFFFFF&bg1=FFFFFF&f=ifr

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Alive and Kicking With a Limp

 

If you want to know a little bit about me I’ve written an interesting article over on Squidoo. The article is called  Alive and Kicking with a Limp: All About Me and discusses basically who I am. It was part of a Rocket-Squids challenge and it has been a huge success.

 

I talk about my disease (Heterozygous Factor V Leiden Mutation) and conditions (Chronic Fatigue Syndrome) but that’s not all there is to me. I love to practice karate, read, write and research, but I also love music.

If you want to find out some more information on my then follow the Alive and Kicking with a Limp: All About Me link and tell me what you think.

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How Do I Survive

It dawned on me the other day that without my medications I would probably be dead. Simple as that: dead. When you think about it it’s a scary thought, the fact that I have to go about this daily routine administering different medications at different times just to stop my body from destroying itself. My body may not want to live but my mind sure as hell does, there’s a whole bunch of stuff I’ve yet to do before I die.

I thought I’d write a post on all of the medication that I have to take in a single day. I can only assume that there are others in a similar situation to me who are looking for some support or some information on any of these diseases.

Tramadol

I use this medication to help me control the pain in my leg, muscles and joints. It’s a bit of a party popper as I have to avoid alcohol with it. Although I have discovered that I can have a small drink with it if I’m having a good pain day and don’t need my full dosage. Just be very careful if you’re going to do this, it says to avoid alcohol for a reason, mainly because the combination of the full dosage and alcohol can slow your breathing making it very dangerous for you.

Clexane (Enoxaparin Sodium)

This little beast is my main life saver at the moment. I have to take this 100mg injection every 12 hours to keep my platelets down, thin my blood and keep this animal of a clot in place (it’s at least 3ft long and living in my left leg and tummy). Here are a couple of articles I have written on Clexane:

Seretide and Ventolin

Just like the Clexane I have to take a steroid inhaler every 12 hours to keep my asthma at bay and the ventolin I take as and when as a reliever. I’ve had these inhalers for quite a while now and they don’t really bother me anymore, they have become part of my morning and evening routine and that’s that.

Green Tea

I’ve started taking a green tea capsule in the morning to help give me a natural energy boost. I’ve found that it really helps kick the morning brain fog in the booty. I’ve written an in-depth Squidoo Lens on the Benefits of Green Tea for Chronic Fatigue Patients if you want to find out more.

Probiotic Yoghurt

These crazy little bacteria help to keep my bloat and IBS at bay. I haven’t really done much research on these little blighters (it’s on my to-do list) but I know they work and keep me comfortable.

Arnica

I’ve yet to write a full blown article on my love affair with arnica but it has done wonders for my post-thrombotic syndrome and helps to also get rid of bruising and any hematomathat crop up from my injections. You can buy some Arnica cream from Amazon so you can keep it on hand for any knocks and bumps.

Crutches

I uses these daily to help me get around. I can only walk a couple of paces without holding onto something and I can only do that inside. When I first came out of hospital I was on my own rehab program so that I could get fit enough to go back to work (we all need money right) and that involved me doing some time on an exercise bike and some upper body work so that I could use the crutches effectively. That rehab has now stopped because I get my “exercise” from work – trust me on this one by the time I’ve got to work I’m knackered, it’s hard work walking with a massive limp and dud leg.
Unfortunately the situation that I’m in at the moment means that I can’t participate in my beloved karate, I can only sit and watch. It also means that until this clot has stabilized or gotten smaller I can’t do any more rehab otherwise I risk breaking the clot and dying.

IVC Filter

I had this bad boy fitted when I was hospitalized. Basically, all it does is sit in the big vein that runs down the middle of the torso and stop any blood clots from reaching my lungs, brain or heart. It’s my biggest life saver (aside the Clexane) and acts as a warning signal that a clot has broken off (I’ll get chest pain and limb swelling) and that it’s time to dial for an ambulance. I have to get it checked out every 6 months just to make sure it’s ok and not moved or anything.

Foots Stools

I have these pretty much everywhere I go. I even have one in the car for if I’m out and about and need to stick my leg up. The foot stools help with the Venous Insufficiency – where the valves are now busted in the main vein blood will pool in the bottom of my leg so by having my leg up where ever possible I can let gravity take the blood to my hip where the unbroken veins will take over.

Warfarin

I haven’t started this medication yet but I will do once my blood work is stable. I will eventually be on this medication for the rest of my life to keep my blood thin and

Right, I’m fairly sure those are all the medications that I’m on or due to go on. If you have any questions or thoughts on these then by all means leave me a comment.

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Healthy Living With An Illness

If you’ve ever been poorly for any length then you’ll begin to understand what it is like to live like that every single day of your life. Just so that you know what I’m talking about I’ll give you a quick run down on what I’ve finally been diagnosed with after all these years of searching.

Heterozygous Factor V Leiden

I know, it’s a bit of a mouthful to say and it’s certainly more than a handful to live with. Basically what that means for me is that my body cannot break down clots which has lead to an extensive Deep Vein Thrombosis in my left leg. I have to take twice daily heparin injections to stay alive but I’ve written a separate post explaining exactly what Factor V is so if you want to you can check it out here.

Deep Vein Thrombosis (DVT)

This is a complication of my Factor V Leiden disease and has recently landed me in hospital for a month and home care for an extra 3. A deep vein thrombosis is a clot that gets stuck in the largest vein in  your lower body, normally found in the calf. There are many risk factors for getting a DVT and it is wise to be aware of them as they can cause further complications such as Venous Insufficiency and Post-Thrombotic Syndrome.

Venous Insufficiency

Venous insufficiency occurs when there has been damage to the valves in the veins. If the valves don’t work in a vein then blood will pool in the lower extremities and can cause a whole host of nasty complications such as ulcers on the skin, swelling, and pain. Here is a previous article that goes into detail if you want to find out more.

Post-Thrombotic Syndrome

I must say, this complication is not fun (most complications never are). It is a condition that at least 50% of DVT patients will suffer from and there is currently no cure. Symptoms include pain, swelling and fatigue with more information to be found here.

Asthma

This particular condition I have had since I was a child, however, since my hospitalization it has gotten worse because I had a few pulmonary embolisms (clots that went to my lungs). I am currently on twice daily steroids and an inhaler when I need it. Asthma is caused by irritants making the windpipe contract making it difficult to breathe but the steroids help to calm down the reaction.

Chronic Fatigue Sydrome

Now, this is an interesting one, I’m on the fence as to whether I actually have this or not but either way the treatment is the same. Basically, I don’t know whether my fatigue is caused by my blood disease or whether it’s because I’ve got CFS. I wont really know until my blood is under control which might take a couple of years to do. Anyway, here are a couple of links about Chronic Fatigue Syndrome, what it is, and what it’s like to live with it.

 I also have two things that I couldn’t live without at the moment:

  • Arnica
    to help take away the bruising and soreness from my injections.

There you have it, my reasons for trying to live a health life with a handful of chronic illnesses. I admit I’m not good everyday but I always try and do better than the day before. I hope you enjoy reading this on my journey towards a healthier me.

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Filed under Chronic Fatigue Syndrome, Deep Vein Thrombosis, Heterozygous Factor V Leiden, Medicines